{"id":222,"date":"2023-04-17T11:34:43","date_gmt":"2023-04-17T15:34:43","guid":{"rendered":"http:\/\/www.stmaryspalliativecare.ca\/?page_id=222"},"modified":"2024-10-24T10:54:01","modified_gmt":"2024-10-24T14:54:01","slug":"caregivers","status":"publish","type":"page","link":"http:\/\/www.stmaryspalliativecare.ca\/en\/patients-and-families\/caregivers\/","title":{"rendered":"Caregivers"},"content":{"rendered":"\n<div class=\"wp-block-group is-style-container\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<p>Caregivers play an essential role in helping individuals with reduced autonomy. Many people with a serious illness will at some point be faced with this reality, and depend on others for their care. In order to stay at home, they will require help. Caregivers who provide care at home are usually partners or other loved ones. Some individuals may also receive care from private caregivers.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n\n<p>Caregiving can be very rewarding. Caregivers have a significant impact on the wellbeing and quality of life of those they are caring for. Caregiving can bring individuals closer to their loved one who needs assistance. It can also help strengthen relationships with family and friends, and provide a new sense of meaning and purpose in life.&nbsp;&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Challenges of caregiving<\/h2>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"891\" height=\"1024\" src=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-challenges-of-caregiving-891x1024.jpg\" alt=\"\" class=\"wp-image-391\" style=\"aspect-ratio:1;object-fit:cover;width:410px\" srcset=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-challenges-of-caregiving-891x1024.jpg 891w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-challenges-of-caregiving-261x300.jpg 261w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-challenges-of-caregiving-768x882.jpg 768w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-challenges-of-caregiving-1337x1536.jpg 1337w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-challenges-of-caregiving.jpg 1741w\" sizes=\"auto, (max-width: 891px) 100vw, 891px\" \/><\/figure><\/div>\n\n\n<p>Caregivers also face many challenges. The responsibility of being a caregiver can be intense; it can be overwhelming, stressful and exhausting. Caregivers also often struggle to keep up with their care duties and juggle the needs and responsibilities of their own lives, including children, friends, work or school.&nbsp;<\/p>\n\n\n\n<p>Other common challenges for caregivers\u2014and sources of stress\u2014include:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Long hours<\/li>\n\n\n\n<li>Physically demanding care duties<\/li>\n\n\n\n<li>Inability to set limits or boundaries<\/li>\n\n\n\n<li>Relationship problems<\/li>\n\n\n\n<li>Time pressures<\/li>\n\n\n\n<li>Sleep interruptions<\/li>\n\n\n\n<li>Limited resources<\/li>\n\n\n\n<li>Financial problems<\/li>\n\n\n\n<li>Inability to meet work or school commitments<\/li>\n\n\n\n<li>Pushing themselves too hard\u2014trying to be everything to everyone<\/li>\n\n\n\n<li>Fear that their loved one will die<\/li>\n\n\n\n<li>Social isolation<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">Impact on caregivers<\/h3>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"1024\" src=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-impact-on-caregivers-e1690916590299-1024x1024.jpg\" alt=\"\" class=\"wp-image-396\" style=\"aspect-ratio:1;object-fit:cover;width:410px\" srcset=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-impact-on-caregivers-e1690916590299-1024x1024.jpg 1024w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-impact-on-caregivers-e1690916590299-300x300.jpg 300w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-impact-on-caregivers-e1690916590299-150x150.jpg 150w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-impact-on-caregivers-e1690916590299-768x769.jpg 768w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2023\/05\/ste-marys-hospital-impact-on-caregivers-e1690916590299.jpg 1499w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<p>It is common for caregivers to feel overwhelmed and high levels of stress. It is a normal reaction to a very difficult situation. It is also common to experience high levels of fatigue. Caregiving can be physically and emotionally demanding. Caregivers also often care for their loved ones at the expense of their own health, which can contribute to the overall impact of the caregiving experience.<\/p>\n\n\n\n<p>There is a wide range of emotions that are commonly associated with caregiving, and which can significantly impact the everyday life of the caregiver. These include:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Worry<\/li>\n\n\n\n<li>Anxiety<\/li>\n\n\n\n<li>Frustration<\/li>\n\n\n\n<li>Impatience<\/li>\n\n\n\n<li>Dislike<\/li>\n\n\n\n<li>Anger<\/li>\n\n\n\n<li>Sadness<\/li>\n\n\n\n<li>Guilt<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">When you should get help<\/h3>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" src=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-when-get-help-caregivers-1024x682.jpg\" alt=\"\" class=\"wp-image-698\" style=\"aspect-ratio:1;object-fit:cover;width:410px\" srcset=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-when-get-help-caregivers-1024x682.jpg 1024w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-when-get-help-caregivers-300x200.jpg 300w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-when-get-help-caregivers-768x512.jpg 768w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-when-get-help-caregivers-1536x1024.jpg 1536w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-when-get-help-caregivers.jpg 2000w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<p>It is common and normal to feel stressed, anxious, sad and tired in response to the demands of caregiving. However, if you feel overwhelmed and are having difficulty coping, you should not try to deal with this all on your own. Reach out to family and friends, join a support group, engage outside assistance, or get professional counselling\u2014whatever you think will work to ease your burden and improve how you feel.&nbsp;<\/p>\n\n\n\n<p>If you feel completely overwhelmed and unable to cope, or identify with any of the following experiences, it might be a good idea to talk to a professional, such as a social worker, psychologist or family doctor.&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Avoiding everyday activities<\/li>\n\n\n\n<li>Feeling depressed<\/li>\n\n\n\n<li>Feeling completely helpless<\/li>\n\n\n\n<li>Changes in attitude, mood or appetite<\/li>\n\n\n\n<li>Difficulty concentrating and\/or memory problems<\/li>\n\n\n\n<li>Feeling extremely anxious and\/or irritable<\/li>\n\n\n\n<li>Increased conflict in your relationships<\/li>\n\n\n\n<li>Feeling isolated.<\/li>\n\n\n\n<li>Change in habits, such as more than usual use of alcohol<\/li>\n<\/ul>\n\n\n\n<div style=\"height:57px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group has-background\" style=\"background-color:#9fb3dd26\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-group is-style-container\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading\">Stress test for caregivers<em>*<\/em><\/h2>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"800\" src=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/08\/caregivers-illustration.jpg\" alt=\"\" class=\"wp-image-966\" style=\"width:410px\" srcset=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/08\/caregivers-illustration.jpg 800w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/08\/caregivers-illustration-300x300.jpg 300w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/08\/caregivers-illustration-150x150.jpg 150w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/08\/caregivers-illustration-768x768.jpg 768w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/figure><\/div>\n\n\n<p>Answer the statements below with one of the following: a)&nbsp;seldom, b)&nbsp;sometimes, c)&nbsp;often, d)&nbsp;usually or e)&nbsp;always.<strong>&nbsp;<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li> I find I can\u2019t get enough rest.<\/li>\n\n\n\n<li> I don\u2019t have enough time for myself.<\/li>\n\n\n\n<li> I don\u2019t have time to be with other family members besides the person I care for.<\/li>\n\n\n\n<li> I feel guilty about my situation.<\/li>\n\n\n\n<li> I don\u2019t get out much anymore.<\/li>\n\n\n\n<li> I have conflict with the person I care for.<\/li>\n\n\n\n<li> I have conflict with other family members.<\/li>\n\n\n\n<li> I cry every day.<\/li>\n\n\n\n<li> I worry about having enough money to make ends meet.<\/li>\n\n\n\n<li> I don\u2019t feel I have enough knowledge or experience to give care as well as I\u2019d like.<\/li>\n\n\n\n<li> My own health is not good.<\/li>\n<\/ol>\n\n\n\n<p><strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-red-color\"><i class=\"fa-solid fa-heart-circle-exclamation\"><\/i><\/mark> If you respond to two or more of these statements with \u2018usually\u2019 or \u2018often\u2019, it may be time to talk to a healthcare professional or social worker about what you are experiencing, and to think about getting help with your caregiving responsibilities.&nbsp;<\/strong><\/p>\n\n\n\n<p class=\"has-small-font-size\">* St. Mary\u2019s Research Centre. Guidebook for Family Caregivers. Montreal: St. Mary\u2019s Hospital Foundation, September 2013.&nbsp;<\/p>\n<\/div><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group is-style-container has-white-background-color has-background\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<h2 class=\"wp-block-heading\">Self-care suggestions<\/h2>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignright size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" src=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-caregivers-socialize-1024x682.jpg\" alt=\"\" class=\"wp-image-706\" style=\"width:410px\" srcset=\"http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-caregivers-socialize-1024x682.jpg 1024w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-caregivers-socialize-300x200.jpg 300w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-caregivers-socialize-768x512.jpg 768w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-caregivers-socialize-1536x1024.jpg 1536w, http:\/\/www.stmaryspalliativecare.ca\/wp-content\/uploads\/2024\/01\/st-mary-caregivers-socialize.jpg 2000w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/div>\n\n\n<p>You have to take care of yourself. Many of the challenges and stresses associated with caregiving cannot be eliminated or prevented; however, it is extremely important that you take care of yourself and your health. The stronger you are\u2014physically and mentally\u2014the better you will be able to manage difficult emotions and the demands of caregiving. The wear and tear on your mind and body of regularly being under stress increases your risk of health problems. It is essential that you find ways to focus on yourself that will help reduce the impact of the challenges of your caregiving role.&nbsp;<\/p>\n\n\n\n<p>Below are some suggestions for taking care of your physical and emotional health. Try to do something every day for yourself. You may feel like there are not enough hours in the day or that it\u2019s all easier said than done. You may feel that you\u2019re too tired and frustrated to bother. But just start by trying a couple of things that you think would work for you. Even small steps can make a big difference.<\/p>\n\n\n    <div class=\"accordeon\">\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Take care of your own health<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Make sure you don\u2019t ignore the details of your own health. See your doctor and dentist regularly for checkups, remember to take your medications, and follow up on any concerns you have about your health.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Eat healthy<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>When you\u2019re stressed and busy, it\u2019s easier to eat what\u2019s convenient than to prepare healthy meals. However, a balanced diet, with plenty of fruits and vegetables, is important to maintain your health and keep your energy levels up.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Get enough rest<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>It\u2019s easier to cope if you\u2019re well rested. If your caregiving responsibilities make it difficult to get a complete night\u2019s sleep, try taking naps during the day when you can. Also, try to schedule breaks for yourself\u2014some time away from caregiving to relax and recharge.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Be physically active<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Even though you may feel exhausted\u2014and perhaps your caregiving responsibilities are physically demanding\u2014try to fit some kind of physical activity or exercise that you enjoy into your routine. This could be simply a short walk or bike ride. Regular exercise can help reduce stress and fatigue, and improve sleep.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Try stress-relieving activities<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Getting enough rest, eating healthy and being physically active are all important basics to help manage stress. In addition, there are a number of techniques you could explore to help reduce stress, including meditation, yoga, deep breathing exercises, visualization and massage therapy. Everyone experiences stress differently\u2014you may have to try different approaches until you find something that works well for you.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Ask questions<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Find out as much as you can about what your caregiving involves. Knowing what\u2019s expected of you and what you can expect can help reduce worry and stress. Talk to the healthcare team and the social worker, and make a list of all of the caregiving tasks that you will have to do. Also ask about\u00a0 symptoms and side effects\u00a0 that you should be aware of\u2014what you should do to manage them and when you should contact someone for help.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Know your limits<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Be clear with yourself and others about what you can realistically do, and what you are comfortable doing, as a caregiver. Focus on what\u2019s most important and try not to worry about small things. You may need to talk to family members or the healthcare team if you can\u2019t handle all of the responsibilities, or there are tasks, such as giving medicines or bathing, that you are not comfortable doing.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Organize the details<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Keep important information, such as appointments, medications and contacts, organized and easy to find. Use an agenda, calendar, schedule or an online app to keep track of activities for your loved one and yourself. Having everyday items organized can help reduce stress and frustration.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Ask for help<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Many people find asking for help difficult. However, it can be very hard\u2014and stressful\u2014to take on all of the caregiving responsibilities on your own and manage your life as well. Accepting help can relieve some of the pressure you may feel as a caregiver, and can have a positive impact on your health, physically and mentally.<\/p>\n<ul>\n<li aria-level=\"1\"><strong>Consider asking family and friends to help with everyday tasks<\/strong>, such as grocery shopping, meal preparation, housework, babysitting, or picking up prescriptions. People often want to help, but they&#8217;re not surewhat they should offer to do. You can also ask them if they would be able to spend some time with your loved one. This would give you a break and provide an opportunity for your loved one to have some social time with others.<\/li>\n<li aria-level=\"1\"><strong>Try sharing the caregiving duties<\/strong>. If your caregiving role is too much for you, especially if you have other responsibilities such as children and a job, talk to your family about sharing the caregiving duties. For example, one person could be in charge of medical appointments, and someone else could do the cooking. Whatever everyone is most comfortable with.<\/li>\n<li aria-level=\"1\"><strong>Find out about homecare or community services in your area<\/strong>. Homecare services are offered by all CLSCs in Qu\u00e9bec to help individuals who have reduced autonomy or who require care at home. These services are essential to keep individuals home as long as possible. The CLSC offers various services that can assist caregivers including helping with patient hygiene and other personal needs. Talk to the healthcare team to see if a referral to the CLSC might be appropriate.<\/li>\n<li aria-level=\"1\"><strong>Find out if there is respite care in your area<\/strong>. If your caregiver role is physically demanding, find out if respite care is available in your area so that you can take some time off. Respite care can be provided at home or in a healthcare institution.<\/li>\n<\/ul>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Keep the lines of communication open<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>It is important to maintain open communication with the individuals that you interact with as part of your caregiving role, such as medical personnel and social workers. Communication is essential for successfully managing challenging situations regarding the care of your loved one. Communication is also important in your personal and professional life. It can help maintain healthy relationships with family and friends, and resolve issues with your employer, if relevant.<\/p>\n<ul>\n<li aria-level=\"1\"><strong>Check in regularly with the healthcare team.<\/strong> Make sure they are aware of any changes with your loved one and of any new challenges you are facing as a caregiver. Also, ask questions about the status of the health of your loved one, and if you need to know anything else about their situation.<\/li>\n<li aria-level=\"1\"><strong>Discuss your expectations and concerns with the person you are caring for<\/strong>. Ask them about their concerns and needs. It can help if you both understand each other\u2019s position clearly. Try not to avoid difficult conversations. This can result in unnecessary stress, anger and resentment.\n<ul>\n<li aria-level=\"1\">If you would like extra help in the home but your loved one refuses to agree to this, talk to them about their reasons. Also, explain your needs and why you feel the help is necessary in order to be able to care for them properly.<\/li>\n<li aria-level=\"1\">If you haven\u2019t already had a discussion with your loved one about advance care planning, you might consider raising this topic with them. If you\u2019re not sure how to start the discussion, or if they are reluctant to talk to you about this, a professionnal from the treating team could give you some\u00a0 tips on how to get started or facilitate the conversation for you. It\u2019s important that you know your loved one\u2019s preferences regarding medical care in the event you have to make decisions for them. You can get more information about <a href=\"http:\/\/www.stmaryspalliativecare.ca\/en\/patients-and-families\/advance-care-planning\/\">advance care planning<\/a> in the \u201cPatient and families\u201d section.<\/li>\n<\/ul>\n<\/li>\n<li aria-level=\"1\"><strong>Talk to your employer, or the human resources department of your company, about your situation<\/strong>. Find out what your options are regarding items such as flex time, reduced hours and leave. Ask if there are any employee assistance programs that could help with your caregiving responsibilities. In Canada, there are few programs that allow caregivers to take paid time off in certain circumstances via employment insurance. Ask the treating team if you have any questions. You can also find more information on the following website: <a href=\"https:\/\/www.canada.ca\/en\/services\/benefits\/ei\/caregiving.html\">www.canada.ca\/en\/services\/benefits\/ei\/caregiving.html<\/a>.<\/li>\n<\/ul>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Express your feelings<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>It is important to find ways to express your feelings and concerns throughout your caregiving. Sharing your worries and difficult emotions can help you keep a balanced perspective about your role and experiences. On the other hand, ignoring what you\u2019re feeling and what\u2019s bothering you can increase stress levels and drain your energy.<\/p>\n<ul>\n<li aria-level=\"1\"><strong>Keep a journal.<\/strong> Writing in a journal can be an effective outlet for expressing your emotions and worries, and a way to work out issues you may be dealing with.<\/li>\n<li aria-level=\"1\"><strong>Talk to someone.<\/strong> Share your feelings with a trusted friend or family member. Or you might prefer to talk to a professional counsellor, such as a psychologist, social worker or spiritual care provider.<\/li>\n<li aria-level=\"1\"><strong>Join a support group.<\/strong> Sharing information and experiences with people who understand what you\u2019re going through can help ease the burden of caregiving and help reduce feelings of isolation.<\/li>\n<\/ul>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Socialize<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Isolation can be an occupational hazard for a caregiver. As much as it is possible, find some time to regularly participate in social and recreational activities. Also, try to spend time with family and friends outside of your caregiving role. Even something as simple as going out for a coffee with a friend can make a difference. Think of activities that you enjoy and are even easy to make happen\u2014especially anything that you know will make you laugh. Ask someone you trust to stay with your loved one if you\u2019re concerned about leaving them alone, even for a short time.<\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Pamper yourself<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p>Find ways to pamper yourself. This could be something like getting a massage or relaxing in a hot bath; but even taking breaks to read a book or watch TV counts! It may sound frivolous; however, indulging yourself like this can be soothing and nurturing.<\/p>\n<\/div>\r\n            <\/div>\r\n            <\/div>\r\n\n\n\n<h2 class=\"wp-block-heading\">Resources<\/h2>\n\n\n\n<p>See the list below for support and resources for caregivers. Disease-specific organizations, such as The Alzheimer Society of Canada and MS Society of Canada also have information and support for caregivers. Have a look at organization websites like these if they are relevant for you and the person you are caring for.&nbsp;<\/p>\n\n\n    <div class=\"accordeon\">\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Compassionate leave and benefits<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><ul>\n<li><strong>Government of Canada<\/strong> \u2013 Caregiving benefits and leave: <a href=\"http:\/\/www.canada.ca\/en\/services\/benefits\/ei\/caregiving.html\">www.canada.ca\/en\/services\/benefits\/ei\/caregiving.html<\/a>.<\/li>\n<li><strong>Government of Canada<\/strong> \u2013 Caregiver credit: <a href=\"http:\/\/www.canada.ca\/en\/revenue-agency\/services\/tax\/individuals\/topics\/about-your-tax-return\/tax-return\/completing-a-tax-return\/deductions-credits-expenses\/canada-caregiver-amount.html\">www.canada.ca\/en\/revenue-agency\/services\/tax\/individuals\/topics\/about-your-tax-return\/tax-return\/completing-a-tax-return\/deductions-credits-expenses\/canada-caregiver-amount.html<\/a>.<\/li>\n<li><strong>Government of Qu\u00e9bec<\/strong> \u2013 Tax credit for caregivers: <a href=\"http:\/\/www.revenuquebec.ca\/en\/citizens\/tax-credits\/tax-credit-for-caregivers\/\">www.revenuquebec.ca\/en\/citizens\/tax-credits\/tax-credit-for-caregivers\/<\/a>.<\/li>\n<\/ul>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Qu\u00e9bec organizations<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p><b>APPUI proches aidants:<\/b> <a href=\"http:\/\/lappui.org\/en\"><span style=\"font-weight: 400;\">http:\/\/lappui.org\/en<\/span><\/a><span style=\"font-weight: 400;\">. This organization provides support and services to caregivers throughout Qu\u00e9bec. Services (all free) include:\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\">Caregiver support helpline<span style=\"font-weight: 400;\">: Professional counsellors provide support to caregivers who need to talk or need help finding local resources.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Directory of resources and services by region. The directory includes information for a wide range of services, such as:<\/span>\n<ul>\n<li><span style=\"font-weight: 400;\">Respite services<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Documentation advice<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Workshop and training activities<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Legal and tax assistance<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Home care<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Transportation.<\/span><\/li>\n<\/ul>\n<\/li>\n<li><span style=\"font-weight: 400;\">Articles, videos and guides on a wide variety of topics of interest to caregivers, such as:<\/span>\n<ul>\n<li><span style=\"font-weight: 400;\">Tax benefits<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Navigating the administrative process<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Learning about the healthcare system<\/span><\/li>\n<li><span style=\"font-weight: 400;\">Support groups<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><b>CLSCs (local community health services centres):<\/b> <span style=\"font-weight: 400;\">To find a CLSC in your area, go to<\/span> <a href=\"https:\/\/santemontreal.qc.ca\/en\/public\/montreals-institutions-at-a-glance\/clscs\/\"><span style=\"font-weight: 400;\">https:\/\/santemontreal.qc.ca\/en\/public\/montreals-institutions-at-a-glance\/clscs\/<\/span><\/a><span style=\"font-weight: 400;\">. A social worker will contact you if the help you require is related to caregiving. Services provided by CLSCs are free and include:\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Day centre<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Nursing care at home<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Equipment loan<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Home help<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Psychosocial services<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Physical rehabilitation (long term)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Home respiratory therapy\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Occupational therapy at home<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Home nutrition<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Permanent and temporary accommodation for respite care or palliative care<\/span><\/li>\n<\/ul>\n<p><b>\u00c9ducaloi \u2013 Caregivers: Practical Legal Tools: <\/b><a href=\"https:\/\/educaloi.qc.ca\/en\/web-guide\/caregivers-legal-tools\/\"><span style=\"font-weight: 400;\">https:\/\/educaloi.qc.ca\/en\/web-guide\/caregivers-legal-tools\/<\/span><\/a><span style=\"font-weight: 400;\">. This website provides information on legal topics relevant to caregivers. Topics include:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Caregiver rights when balancing work<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Legal healthcare issues related to consent and medical records<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Navigating the health and social services network<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Balancing work and caregiving<\/span><\/li>\n<\/ul>\n<p><b>Proche aidance Qu\u00e9bec<\/b><b>: <\/b><a href=\"https:\/\/procheaidance.quebec\"><span style=\"font-weight: 400;\">https:\/\/procheaidance.quebec<\/span><\/a><span style=\"font-weight: 400;\">. <\/span><i><span style=\"font-weight: 400;\">(<\/span><\/i><i><span style=\"font-weight: 400;\">French only)<\/span><\/i> <span style=\"font-weight: 400;\">Includes a comprehensive directory of caregiving groups, associations and local organizations in Qu\u00e9bec that support caregivers.\u00a0<\/span><\/p>\n<p><b>Biblio Sant\u00e9 \u2013 Caregivers Booklet: <\/b><a href=\"https:\/\/bibliosante.ca\/fr\/information_sante\/proches-aidants.php\"><span>https:\/\/bibliosante.ca\/fr\/information_sante\/proches-aidants.php<\/span><\/a>.\u00a0<span><em>(French only)<\/em> Includes a list of fiction and non-fiction publications and films on the topic of caregiving.<\/span><\/p>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">National organizations<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p><strong>Public Health Agency of Canada<\/strong>: <a href=\"http:\/\/www.canada.ca\/en\/public-health\/services\/reports-publications\/responding-stressful-events\/self-care-caregivers.html\">www.canada.ca\/en\/public-health\/services\/reports-publications\/responding-stressful-events\/self-care-caregivers.html<\/a>. The PHAC\u2019s brochure <em>Responding to Stressful Events: Self-Care for Caregivers<\/em> provides information on common sources of stress for caregivers, as well as the typical signs of stress and how to cope with them. It also provides guidance on when to seek help.<\/p>\n<p><strong>Canadian Virtual Hospice&#8211;Caregivers CAN<\/strong>: <a href=\"http:\/\/www.virtualhospice.ca\/caregiving\">www.virtualhospice.ca\/caregiving<\/a>. This website includes:<\/p>\n<ul>\n<li aria-level=\"1\">Information modules on a range of topics, such as:\n<ul>\n<li>Self-care strategies<\/li>\n<li>Strategies for difficult conversations<\/li>\n<li>Preparing for caregiving at home<\/li>\n<li>Recognizing symptoms<\/li>\n<li>Medications<\/li>\n<\/ul>\n<\/li>\n<li aria-level=\"1\">Video demonstrations of caregiving tasks.<\/li>\n<li aria-level=\"1\">A \u201cCareHub\u201d tool to help you improve care coordination, such as managing appointments, symptom tracking, communication with healthcare professionals, medication schedules and a personalized information library.<\/li>\n<\/ul>\n<p><strong>Carers Canada:<\/strong>\u00a0<a href=\"http:\/\/www.carerscanada.ca\">www.carerscanada.ca<\/a>. (<em>English only<\/em>) Information and resources include:<\/p>\n<ul>\n<li>Caregivers\u2019 stories<\/li>\n<li>Organizations supporting caregivers<\/li>\n<li>Caregiver wellbeing<\/li>\n<li>Balancing caregiving and work<\/li>\n<li>Caregiver-friendly workplaces<\/li>\n<\/ul>\n<\/div>\r\n            <\/div>\r\n                    <div class=\"accordeon_container\">\r\n                <a href=\"javascript:;\" class=\"accordeon_titre\">Other  resources<\/a>\r\n                <div class=\"accordeon_contenu\" style=\"display:none;\"><p><b>Health Experiences \u2013 Family Caregiving<\/b><span style=\"font-weight: 400;\">: <\/span><a href=\"https:\/\/healthexperiences.ca\/family-caregiving\/family-caregiving\"><span style=\"font-weight: 400;\">https:\/\/healthexperiences.ca\/family-caregiving\/family-caregiving<\/span><\/a><span style=\"font-weight: 400;\">. This website has a wide range of videos of real-life stories. You can watch and listen to caregivers talk about their experiences, the impact caregiving has had on their lives, and advice they would give to other caregivers.<\/span><\/p>\n<p><b>CURE Foundation&#8211;Looking Forward: <\/b><a href=\"https:\/\/lookingforward.curefoundation.com\/chapters\/chapter-6\"><span style=\"font-weight: 400;\">https:\/\/lookingforward.curefoundation.com\/chapters\/chapter-6<\/span><\/a><span style=\"font-weight: 400;\">.<\/span> <span style=\"font-weight: 400;\">Looking Forward is a resource for cancer patients in recovery. The chapter on caregiving, however, has a lot of information and resources that would be useful to caregivers at any stage of an illness. Topics include:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Self-care strategies<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Work-related issues and resources<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Financial resources<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Support groups<\/span><\/li>\n<\/ul>\n<\/div>\r\n            <\/div>\r\n            <\/div>\r\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group has-background\" style=\"background-color:#dcd5c6\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-group is-style-container\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-group is-style-default\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<p><strong>This content was developed from the following sources :&nbsp;<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Canadian Cancer Society. Caregiving. <a href=\"http:\/\/www.cancer.ca\/en\/cancer-information\/living-with-cancer\/caregiving\/?region=qc\">www.cancer.ca\/en\/cancer-information\/living-with-cancer\/caregiving\/?region=qc<\/a>. Accessed November 28, 2022.<\/li>\n\n\n\n<li>CIUSSS West-Central Montr\u00e9al. Caregivers. <a href=\"http:\/\/www.ciussswestcentral.ca\/programs-and-services\/caregivers\/\">www.ciussswestcentral.ca\/programs-and-services\/caregivers\/<\/a>. Accessed November 28, 2022.<\/li>\n\n\n\n<li>CURE Foundation&#8211;Looking Forward. Family Caregiver Support. <a href=\"https:\/\/lookingforward.curefoundation.com\/chapters\/chapter-6\">https:\/\/lookingforward.curefoundation.com\/chapters\/chapter-6<\/a>. Accessed November 28, 2022.<\/li>\n\n\n\n<li>Public Health Agency of Canada. Self-Care for Caregivers. <a href=\"http:\/\/www.canada.ca\/en\/public-health\/services\/reports-publications\/responding-stressful-events\/self-care-caregivers.html\">www.canada.ca\/en\/public-health\/services\/reports-publications\/responding-stressful-events\/self-care-caregivers.html<\/a>. Accessed November 28, 2022.<\/li>\n\n\n\n<li>Qu\u00e9bec Government. Informal and family caregiver. <a href=\"http:\/\/www.quebec.ca\/en\/family-and-support-for-individuals\/informal-and-family-caregiver\" target=\"_blank\" rel=\"noreferrer noopener\">www.quebec.ca\/en\/family-and-support-for-individuals\/informal-and-family-caregiver<\/a>. Accessed November 28, 2022.<\/li>\n<\/ul>\n<\/div><\/div>\n<\/div><\/div>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Caregivers play an essential role in helping individuals with reduced autonomy. Many people with a serious illness will at some point be faced with this reality, and depend on others for their care. In order to stay at home, they will require help. 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